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Requesting Data

Before You Start

  • Review data request options
  • Learn about fees, timelines, and privacy requirements

How to Request Data

  1. Complete the Data Request Form
  2. Submit required documents (e.g., research ethics approval if applicable)
  3. BORN reviews your request and will contact you for next steps

Data Request Options

If you need a custom report with aggregated, de-identified information to answer a specific question, this is considered an Aggregate Data Request.

Once the Data Request/Research Coordinator receives your completed inquiry form, they will review it and contact you to confirm any additional details.

  • Initial review: 6–8 weeks
  • Turnaround time: depends on the complexity of your request; an estimate will be provided after the review

Request Aggregated Data

A Record-Level Data Request provides individual-level, de-identified data for detailed research and analysis. This process is more complex than aggregate data requests and may take several months to complete.

Application Requirements

  • Submission of a research and analysis plan
  • Research Ethics Board (REB) approval
  • Iterative risk assessment of re-identification
  • Signed confidentiality agreements
  • A data sharing/research agreement between BORN and your institution

Timelines

  • Initial review: 6–8 weeks
  • Turnaround time: depends on the scope and complexity of the request; an estimate will be provided after review

Alternative Option

If researchers need record-level data but prefer BORN to conduct the analysis, BORN can complete the work internally and provide results as aggregate tables.

For cost details and further information, contact science@bornontario.ca

Request Record-Level Data

BORN maintains two main types of datasets:

  • Historical Birth Record Data (fiscal 2006–2011)
  • Combined Maternal-Child Data (fiscal 2012 onwards)

When submitting a dataset request, you must specify which dataset you need.

Dataset Comparison

Feature Historical Birth Record Data Combined Maternal-Child Data
Time Period Fiscal 2006–2011 Fiscal 2012 onwards
Data sources Niday Perinatal Database; Ontario Midwifery Program Maternal Newborn Reporting System BORN Information System (screening, pregnancy, complex pregnancy, birth, NICU, newborn screening)
Terminology Older terms; not always aligned with current dictionary Updated terms and data dictionary
Data elements Limited; some not linkable to current elements Expanded and standardized
Linkage May not be possible to link some older elements to new dataset Fully linkable within BORN system

Request Dataset

Data Costing Policy

BORN applies fees to recover the costs of preparing aggregate and record-level data for external requestors. Costs depend on the nature and complexity of the request and the time required by analysts to prepare the dataset or tables.

Cost Estimates

  • Provided after an initial consultation and assessment of your request
  • Can be used for grant applications, funded research projects, and QI/Policy work

What Costs Include

  • Opening of file and initial consultation
  • Data de-identification process
  • Analyst time for preparation and verification
  • BORN administrative fee

Reduced Fees

  • Reduced rates may be available for students without grant funding

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Frequently Asked Questions

Help Desk

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