BORN collects personal health information (PHI) for the purpose of facilitating or improving the provision of health care or as otherwise permitted under PHIPA and its Regulation. BORN Holdings consist of the following:

BORN Information System (BIS)

The unique data collections within the BIS are provided by these various health information custodians and other organizations for the provision of specific obstetric, neonatal, and pediatric services, including:

Name of Data Collection within the BISSourceYear of Inception

Perinatal information from Hospitals and Midwifery care:

  • Maternal: prenatal, intrapartum, delivery and postpartum information
  • Child: birth information up until discharge from hospitals or midwifery care
  • Hospitals
  • Midwives
  • Midwifery Practice Group
  • Birth Centre


Newborn screening laboratory information:

  • Newborn screening results (NBS)
  • Diagnostic Evaluation Report Form (DERF) - (for newborn screening positive results)
  • Newborn Screening Ontario
  • Regional Treatment Centres


Prenatal screening laboratory information:

  • Multiple Marker Screening (including ultrasound information)
  • Cytogenetics (Cyto) information: prenatal (maternal) and postnatal (newborn/child)
  • Non-Invasive Prenatal Testing (NIPT) information
  • Laboratories

MMS: 2012

Cyto: 2018

NIPT: 2016

Neonatal Intensive Care Unit (NICU) information

  • Hospitals


CARTR Plus (Canadian Assisted Reproductive Technology Register Plus)
  • IVF Directors


Genetics and Maternal-Fetal Medicine (MFM) information

  • Hospitals


Healthy Baby Healthy Children (HBHC) provincial screening tool 

  • Hospitals
  • Midwifery Care
  • Public Health Unit


Ontario Midwifery Invoicing System (MIS)

  • Midwifery Practice Group
  • Midwives


Enhanced Midwifery Care Models (EMCM) information

  • Midwives


Stand-alone datasets

These datasets are a limited capture in time from other data sources. They are used to supplement information we are collecting in the BORN Information System (BIS) or as a validation tool to ensure high quality level.

Data CollectionsSource Timeframe of data collection

COVID-19 information

  • Infection data
    • Case Report Form for pregnant individuals
    • Case Contact Management
  • Vaccination data
    • COVAX data



Ministry of Health

BORN Information System (BIS) data linked to Infant Death Registration Files* Ontario Office of the Registrar General/Service Ontario  2013-2018

Discharge Abstract Database (DAD) records data

Canadian Institute for Health Information (CIHI)  2002-2021

National Ambulatory Care Reporting System (NACRS) records data

Canadian Institute for Health Information (CIHI) 2003-2021

Niday maternal and child health card numbers 

Institute for Clinical Evaluative Sciences (IC/ES) 2006-2012

* The Infant Death Registration Files are for statistical, epidemiological or other research that is in the public interest.  

Limited data collections

Data collections in this limited category are subject to transition to a closed dataset.

Data CollectionsSourceYear of Inception

Well baby and child data for standardized assessment tools Rourke Baby Record (RBR) Ontario, Nipissing District Developmental Screen (NDDS), as well as height and weight

Primary care clinics   2013

Closed datasets

These datasets are retrievable on the BORN servers, although the access is restricted and the data is not editable.

Name of datasetTimeframe of data collection

FAN (Fetal Alert Network) historical database


Ontario prenatal screening historical database

  • NIPT (Non-Invasive Prenatal Testing) historical database
  • Cytogenetics (Cyto) historical database

NIPT: 2013-2015

Cyto: 2012-2018

Niday Perinatal and NICU/ICU historical database 1999-2012
Ontario Midwifery historical database


Ontario Midwifery Invoicing System (MIS) Historical


CARTR (Canadian Assisted Reproductive Technology Register) historical database


Autism information from the Child and Adolescent Needs and Strengths tool


CANImmunize- Historical datasets from a pilot with participating public health units


Ontario Antenatal Record from Family Health Teams (primary care pilot project)*


*Ability to collect data in the BIS, but limited and/or inactive data provision.