Data Holdings
BORN collects personal health information (PHI) for the purpose of facilitating or improving the provision of health care or as otherwise permitted under PHIPA and its Regulation. BORN Holdings consist of the following:
BORN Information System (BIS)
The unique data collections within the BIS are provided by these various health information custodians and other organizations for the provision of specific obstetric, neonatal, and pediatric services, including:
| Name of Data Collection within the BIS | Source | Year of Inception |
|---|---|---|
|
Perinatal information from Hospitals and Midwifery care:
|
|
2012 |
|
Newborn screening laboratory information:
|
|
2012 |
|
Prenatal screening laboratory information:
|
|
MMS: 2012 Cyto: 2018 NIPT: 2016 |
|
Neonatal Intensive Care Unit (NICU) information |
|
2012 |
| CARTR Plus (Canadian Assisted Reproductive Technology Register Plus) |
|
2013 |
|
Genetics and Maternal-Fetal Medicine (MFM) information |
|
2020 |
|
Healthy Baby Healthy Children (HBHC) provincial screening tool |
|
2015 |
|
Ontario Midwifery Invoicing System (MIS) |
|
2012 |
|
Enhanced Midwifery Care Models (EMCM) information |
|
2021 |
|
Pediatric Diabetes information (longitudinal visit data up to age 18) |
|
2025 |
Stand-alone datasets
These datasets are a limited capture in time from other data sources. They are used to supplement information we are collecting in the BORN Information System (BIS) or as a validation tool to ensure high quality level.
| Data Collections | Source | Timeframe of data collection |
|---|---|---|
|
COVID-19 information
|
Hospitals Midwives Ministry of Health |
2020-2022 |
| BORN Information System (BIS) data linked to Infant Death Registration Files* | Ontario Office of the Registrar General/Service Ontario | 2013-2018 |
|
Discharge Abstract Database (DAD) records data |
Canadian Institute for Health Information (CIHI) | 2002-2021 |
|
National Ambulatory Care Reporting System (NACRS) records data |
Canadian Institute for Health Information (CIHI) | 2003-2021 |
|
Niday maternal and child health card numbers |
Institute for Clinical Evaluative Sciences (IC/ES) | 2006-2012 |
* The Infant Death Registration Files are for statistical, epidemiological or other research that is in the public interest.
Closed datasets
These datasets are retrievable on the BORN servers, although the access is restricted and the data is not editable.
| Name of dataset | Timeframe of data collection |
|---|---|
|
FAN (Fetal Alert Network) historical database |
2005-2012 |
|
Ontario prenatal screening historical database
|
NIPT: 2013-2015 Cyto: 2012-2018 |
| Niday Perinatal and NICU/ICU historical database | 1999-2012 |
| Ontario Midwifery historical database |
2003-2012 |
| Ontario Midwifery Invoicing System (MIS) Historical |
2009-2012 |
|
CARTR (Canadian Assisted Reproductive Technology Register) historical database |
2001-2012 |
|
Well baby and child data for standardized assessment tools Rourke Baby Record (RBR) Ontario, Nipissing District Developmental Screen (NDDS), as well as height and weight (Source: Primary Care Clinics) |
2013 - July 3, 2024 |
|
Autism information from the Child and Adolescent Needs and Strengths tool |
2015-2019 |
|
CANImmunize- Historical datasets from a pilot with participating public health units |
2015-2018 |
|
Ontario Antenatal Record from Family Health Teams (primary care pilot project)* |
2012-2020 |
*Ability to collect data in the BIS, but limited and/or inactive data provision.
Contact Us
BORN Ontario
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Ottawa, ON K1H 8L1
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