Data Holdings

BORN collects personal health information (PHI) for the purpose of facilitating or improving the provision of health care or as otherwise permitted under PHIPA and its Regulation. BORN Holdings consist of the following:

BORN Information System (BIS)

The unique data collections within the BIS are provided by these various health information custodians and other organizations for the provision of specific obstetric, neonatal, and pediatric services, including:

Name of Data Collection within the BIS	Source	Year of Inception
Perinatal information from Hospitals and Midwifery care: Maternal: prenatal, intrapartum, delivery and postpartum information Child: birth information up until discharge from hospitals or midwifery care	Hospitals Midwives Midwifery Practice Group Birth Centre	2012
Newborn screening laboratory information: Newborn screening results (NBS) Diagnostic Evaluation Report Form (DERF) - (for newborn screening positive results)	Newborn Screening Ontario Regional Treatment Centres	2012
Prenatal screening laboratory information: Multiple Marker Screening (including ultrasound information) Cytogenetics (Cyto) information: prenatal (maternal) and postnatal (newborn/child) Non-Invasive Prenatal Testing (NIPT) information	Laboratories	MMS: 2012 Cyto: 2018 NIPT: 2016
Neonatal Intensive Care Unit (NICU) information	Hospitals	2012
CARTR Plus (Canadian Assisted Reproductive Technology Register Plus)	IVF Directors	2013
Genetics and Maternal-Fetal Medicine (MFM) information	Hospitals	2020
Healthy Baby Healthy Children (HBHC) provincial screening tool	Hospitals Midwifery Care Public Health Unit	2015
Ontario Midwifery Invoicing System (MIS)	Midwifery Practice Group Midwives	2012
Enhanced Midwifery Care Models (EMCM) information	Midwives	2021
Pediatric Diabetes information (longitudinal visit data up to age 18)	Pediatric Diabetes Education Programs	2025

Stand-alone datasets

These datasets are a limited capture in time from other data sources. They are used to supplement information we are collecting in the BORN Information System (BIS) or as a validation tool to ensure high quality level.

Data Collections	Source	Timeframe of data collection
COVID-19 information Infection data Case Report Form for pregnant individuals Case Contact Management Vaccination data COVAX data	Hospitals Midwives Ministry of Health	2020-2022
BORN Information System (BIS) data linked to Infant Death Registration Files*	Ontario Office of the Registrar General/Service Ontario	2013-2018
Discharge Abstract Database (DAD) records data	Canadian Institute for Health Information (CIHI)	2002-2021
National Ambulatory Care Reporting System (NACRS) records data	Canadian Institute for Health Information (CIHI)	2003-2021
Niday maternal and child health card numbers	Institute for Clinical Evaluative Sciences (IC/ES)	2006-2012

* The Infant Death Registration Files are for statistical, epidemiological or other research that is in the public interest.

Closed datasets

These datasets are retrievable on the BORN servers, although the access is restricted and the data is not editable.

Name of dataset	Timeframe of data collection
FAN (Fetal Alert Network) historical database	2005-2012
Ontario prenatal screening historical database NIPT (Non-Invasive Prenatal Testing) historical database Cytogenetics (Cyto) historical database	NIPT: 2013-2015 Cyto: 2012-2018
Niday Perinatal and NICU/ICU historical database	1999-2012
Ontario Midwifery historical database	2003-2012
Ontario Midwifery Invoicing System (MIS) Historical	2009-2012
CARTR (Canadian Assisted Reproductive Technology Register) historical database	2001-2012
Well baby and child data for standardized assessment tools Rourke Baby Record (RBR) Ontario, Nipissing District Developmental Screen (NDDS), as well as height and weight (Source: Primary Care Clinics)	2013 - July 3, 2024
Autism information from the Child and Adolescent Needs and Strengths tool	2015-2019
CANImmunize- Historical datasets from a pilot with participating public health units	2015-2018
Ontario Antenatal Record from Family Health Teams (primary care pilot project)*	2012-2020

*Ability to collect data in the BIS, but limited and/or inactive data provision.

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