BORN collects personal health information (PHI) for the purpose of facilitating or improving the provision of health care or as otherwise permitted under PHIPA and its Regulation. BORN Holdings consist of the following:

BORN Information System (BIS)

The unique data collections within the BIS are provided by these various health information custodians and other organizations for the provision of specific obstetric, neonatal, and pediatric services, including:

Name of Data Collection within the BISSourceYear of Inception

Perinatal information from Hospitals and Midwifery care:

  • Maternal: prenatal, intrapartum, delivery and postpartum information
  • Child: birth information up until discharge from hospitals or midwifery care
  • Hospitals
  • Midwives
  • Midwifery Practice Group
  • Birth Centre

2012

Newborn screening laboratory information:

  • Newborn screening results (NBS)
  • Diagnostic Evaluation Report Form (DERF) - (for newborn screening positive results)
  • Newborn Screening Ontario
  • Regional Treatment Centres

2012

Prenatal screening laboratory information:

  • Multiple Marker Screening (including ultrasound information)
  • Cytogenetics (Cyto) information: prenatal (maternal) and postnatal (newborn/child)
  • Non-Invasive Prenatal Testing (NIPT) information
  • Laboratories

MMS: 2012

Cyto: 2018

NIPT: 2016

Neonatal Intensive Care Unit (NICU) information

  • Hospitals

2012

CARTR Plus (Canadian Assisted Reproductive Technology Register Plus)
  • IVF Directors

2013

Genetics and Maternal-Fetal Medicine (MFM) information

  • Hospitals

2020

Healthy Baby Healthy Children (HBHC) provincial screening tool 

  • Hospitals
  • Midwifery Care
  • Public Health Unit

2015

Ontario Midwifery Invoicing System (MIS)

  • Midwifery Practice Group
  • Midwives

2012

Enhanced Midwifery Care Models (EMCM) information

  • Midwives

2021

Limited data collections

Data collections in this limited category are subject to transition to a closed dataset.

Data CollectionsYear of Inception

Well baby and child data for standardized assessment tools Rourke Baby Record (RBR) Ontario, Nipissing District Developmental Screen (NDDS), as well as height and weight

 2013

Closed datasets

These datasets are retrievable on the BORN servers, although the access is restricted and the data is not editable.

Name of datasetTimeframe of data collection

FAN (Fetal Alert Network) historical database

2005-2012

Ontario prenatal screening historical database

  • NIPT (Non-Invasive Prenatal Testing) historical database
  • Cytogenetics (Cyto) historical database

NIPT: 2013-2015

Cyto: 2012-2018

Niday Perinatal and NICU/ICU historical database 1999-2012
Ontario Midwifery historical database

2003-2012

Ontario Midwifery Invoicing System (MIS) Historical

2009-2012

CARTR (Canadian Assisted Reproductive Technology Register) historical database

2001-2012

Autism information from the Child and Adolescent Needs and Strengths tool

2015-2019

CANImmunize- Historical datasets from a pilot with participating public health units

2015-2018

Ontario Antenatal Record from Family Health Teams (primary care pilot project)*

2012-2020

*Ability to collect data in the BIS, but limited and/or inactive data provision.

 

Stand-alone datasets

These datasets are a limited capture in time from other data sources. They are used to supplement information we are collecting in the BORN Information System (BIS) or as a validation tool to ensure high quality level.

Data CollectionsTimeframe of data collection

COVID-19 information

  • Infection data
    • Case Report Form for pregnant individuals
    • Case Contact Management
  • Vaccination data
    • COVAX data
 2020-ongoing
Infant Death Registration Files*  2013-2018

Canadian Institute for Health Information (CIHI) Discharge Abstract Database (DAD) records data

 2002-2021

Canadian Institute for Health Information (CIHI) National Ambulatory Care Reporting System (NACRS) records data

2003-2021

Niday maternal and child health card numbers (provided by IC/ES)

2006-2012

* The Infant Death Registration Files for statistical, epidemiological or other research that is in the public interest.