Paediatric Diabetes Initiative
Overview
The Paediatric Diabetes Initiative is a province-wide effort to improve care for children and youth living with diabetes in Ontario. Led collaboratively by BORN Ontario and the Provincial Council for Maternal and Child Health (PCMCH), this initiative leverages the BORN registry to collect health information from Paediatric Diabetes Education Programs (PDEPs) across Ontario. The registry enables healthcare providers to track outcomes, identify trends, and enhance care for over 8,000 children and youth living with diabetes.
Why This Matters
Diabetes is one of the most common chronic conditions affecting children and youth in Ontario. By collecting and analyzing data through the BORN Information System, healthcare teams gain valuable insights into how, when, and where children and youth are diagnosed, the treatments they receive, and how their health changes over time. This information supports efforts to make care more equitable, effective, and responsive to the diverse needs of young patients and their families.
BORN's Role
BORN Ontario plays a central role in:
- Collecting and storing data from PDEPs in the BORN Information System.
- Providing insights to healthcare providers to improve clinical decision-making.
- Supporting quality improvement through data-driven reports and indicators.
- Collaborating with PCMCH and other partners to align data collection with provincial standards.
Impact and Benefits
For Patients
- Support for Care Coordination: Data can help identify opportunities to improve the timeliness and personalization of care.
- Informed Management: Tracking health over time provides insights that may support proactive care strategies.
For Providers
- Clinical Insights: Access to real-time data supports evidence-based care.
- Standardized Reporting: Enables consistent tracking across programs.
- Quality Improvement: Identifies gaps and opportunities for better care delivery.
For Healthcare
- Equity Monitoring: Helps assess whether services meet diverse needs.
- Policy Development: Informs provincial strategies and resource allocation.
- Faster Action: Registry data can be used more quickly than traditional research to drive change.
Eligibility and Access
Children and youth living with diabetes who receive care from one of Ontario’s 35 Paediatric Diabetes Education Programs are included in the registry (up to the age of 18).
These programs are located in hospitals and community health centres across the province and staffed by multidisciplinary teams including nurses, dietitians, social workers, and endocrinologists.
Feature Story
Did You Know...
Type 1 diabetes in an autoimmune condition where the body mistakenly destroys cells in the pancreas called beta cells. These cells make insulin, a hormone that helps turn sugar from the food into energy. Without insulin, sugar stays in the blood instead of being used by the body.
Stay Informed
Contact BORN Ontario
- General Inquiries: PDR@BORNOntario.ca
- Josée St-Denis, Clinical Content Specialist, RN, CDE
- Check out these FAQs
You can also contact your Diabetes Team for more information.
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