Data Holdings
BORN collects personal health information (PHI) for the purpose of facilitating or improving the provision of health care or as otherwise permitted under PHIPA and its Regulation. BORN Holdings consist of the following:
BORN Information System (BIS)
The BIS is comprised of PHI collected from health information custodians (HICs) and other organizations as listed in the BIS statement of purpose. The unique data collections within the BIS relate to the provision of obstetric, neonatal, pediatric, and youth services (in relative order of decreasing breadth of the data collection):
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Name of Data Collections within the BIS
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Year of Inception
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Perinatal information from Hospitals and Midwifery care
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2012
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Newborn Screening Laboratory information
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NBS: 2012
DERF: variable
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Prenatal Screening Laboratory information
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MMS : 2012
AFAFP: 2012
Cyto : 2018
NIPT : 2016
FetalBGG: 2025
|
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Neonatal Intensive Care Unit (NICU) information
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2012
|
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CARTR Plus (Canadian Assisted Reproductive Technology Register Plus)
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2013
|
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Healthy Baby Healthy Children (HBHC) provincial screening tool
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2015
|
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Genetics-Maternal-Fetal Medicine (MFM) information
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2020
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Enhanced Midwifery Care Models (EMCM) information
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2021
|
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Paediatric Diabetes information
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2025
|
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Unaccommodated Midwifery Client Data
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2024
|
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Congenital Anomalies
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2012
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Stand-alone datasets (ongoing collection outside of the BIS):
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Name of dataset
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Source
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Timeframe of data collection
|
|
BORN Information System (BIS) data linked to Infant Death Registration Files2
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Ontario Office of the Registrar General/Service Ontario
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2013-2018
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Discharge Abstract Database (DAD) records data- processed at BORN available for linkage
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Canadian Institute for Health Information (CIHI)
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2002-Mar2024
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National Ambulatory Care Reporting System (NACRS) records data- processed at BORN available for linkage
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Canadian Institute for Health Information (CIHI)
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2003-Mar2024
|
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Critical Congenital Heart Disease (CCHD) screening information
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Newborn Screening Ontario
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May 2017- Feb 2020
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OHIP billing codes for:
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Institute for Clinical Evaluative Sciences (IC/ES)
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Apr2012-Mar2022 Apr2011- Apr2018 |
Closed datasets (outside of the BIS, no further collection):
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Name of dataset
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Timeframe of data collection
|
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FAN (Fetal Alert Network) historical database 2005
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2005-2010
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FAN (Fetal Alert Network) historical database 2010
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2010-2012
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Ontario Multiple Marker Screening historical database
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2000-2009
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NIPT (non-invasive prenatal testing) historical database
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2013-2015
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Cytogenetics historical database
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2012-2018
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Niday Perinatal and NICU/ICU historical database
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1999-2012
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Ontario Midwifery historical database 2003
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2003-2006
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Ontario Midwifery historical database 2006
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2006-2012
|
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Canadian Assisted Reproductive Technology Registry (CARTR) historical database
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2001-2012
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Ontario Antenatal Record from Family Health Teams (primary care pilot project)*
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2012-2020
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Well baby and child data for standardized assessment tools Rourke Baby Record (RBR) Ontario, Nipissing District Developmental Screen (NDDS), as well as height and weight
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2013-Jul 3, 2024
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Autism information from the Child and Adolescent Needs and Strengths tool*
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2015-2019
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CANImmunize- Historical datasets from a pilot with participating public health units*
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2015-2018
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COVID-19 - Infection data
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2020-Dec31, 2022
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COVID-19 – vaccination data
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2020-Dec31, 2022 (Jan2023)
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Niday maternal and child health card numbers from the Institute for Clinical Evaluative Sciences (IC/ES)
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2006-2012
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Ontario Midwifery Invoicing System (MIS): historical data
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2009-2012
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Ontario Midwifery Invoicing System (MIS):
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2012-2024
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Ontario prenatal screening historical database from North York General Hospital
|
2012-2015
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*Ability to collect data in the BIS, but limited or inactive data submission.
Contact Us
BORN Ontario
401 Smyth Rd
Ottawa, ON K1H 8L1
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