Data Requests
All requests made to BORN Ontario for access to health data will be managed in accordance with the provisions of the Ontario Personal Health Information Protection Act 2004 (PHIPA). Requests will be considered for purposes of research including quality assurance projects. Data may include personal health information and de-identified health information from databases for which BORN Ontario has custody.
Prior to completing the request form, consider emailing the BORN Ontario Scientific Manager (Science@BORNOntario.ca) to discuss your project and learn about: the timelines for data requests; the data request assessments conducted by the Electronic Health Information Laboratory (eHIL) at the Children’s Hospital of Eastern Ontario which determine the risk of re-identification; and the Research Ethics Board requirements.
The application process varies depending on the type of information you are requesting.
- Aggregated data request should be used if you are requesting a custom report to be generated using aggregated, de-identified information to answer a specific question. Click here to access the forms.
- Record level data request should be used if you are requesting data for analysis and research purposes. This application process is for use in requesting use or disclosure of health data from BORN Ontario (formerly OPSS) of the Children’s Hospital of Eastern Ontario (CHEO) (including any databases within the custody or under the control of BORN Ontario), for research or statistical purposes, whether the data is de-identified or personally identifiable personal health information. Click here to access the forms.
Any concerns about the form or privacy issues should be directed to: privacy@BORNOntario.ca
Any concerns about data elements or process for approval please contact: science@BORNOntario.ca
Click here to view a webinar describing the process for dislcosing data for research and public health purposes from the BORN Ontario registry.
